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Celine Dion Talks About Her Battle With Life-Threatening Stiff-Person Syndrome


Céline Dion is sharing details about her health journey.

Nearly two years after the “My Heart Will Go On” singer revealed her diagnosis with stiff-person syndrome, her battle is being explored in the Prime Video documentary “I Am: Celine Dion,” set to release next month. One of the aspects of her health journey that she opens up about is how it nearly cost her her life.

Although fans will have to wait another month for Dion’s full story, the documentary trailer, released on May 23, offers a glimpse of what is to come.

Amid clips of Dion’s visits with medical professionals, mixed in with nostalgic videos of her performing earlier in her career, the “I’m Alive” singer, who recently noted she is working like an athlete to maintain her health, gives crushing details of her affliction in a voice over — and notes the hardest part of it all is her inability to perform.

“It’s not hard to do a show now, it’s hard to cancel a show,” she says. “I’m working hard every day, but I have to admit — it’s been a struggle. I miss it so much. The people. I miss them. If I can’t run, I’ll walk. If I can’t walk. I’ll crawl. I won’t stop.”

Throughout her health journey, Dion’s goal of returning to music seems to motivate her as she looks back at her past performances, reflecting, “I think we did create our own magic.”

Despite her difficult health battle, the five-time Grammy winner makes it clear that she does not let her rare diagnosis define her.

“I see my life, and I love every piece of it,” she continues, seemingly going on to describe her life through a metaphor. “When a girl loves her shoes, she always makes them fit — from six to ten — I love them. Give it to me. Here we go.”

While Dion — who shares sons René-Charles, 23, and twins Nelson and Eddy, 13, with her late husband René Angélil — has largely stayed out of the spotlight during her health journey, she made a grand return to the music stage in February to present Taylor Swift with the 2024 Grammy for Album of the Year.

“Thank you all,” Dion, who was met with a standing ovation when she took the stage, escorted by René-Charles, she told the crowd. “I love you right back. When I say that I’m happy to be here, I really mean it from my heart.”

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